5 years gluten free!

We have been gluten free for 5 years this week. 5 whole years! I remember it like it was yesterday. We were called in to the clinic, it was a Saturday morning, they had some results they said. Aili had been in and out of hospital, I was drained, mentally and physically. My life revolved around my screaming baby and lots of vomit.

We went in, the clinic was busy, lots of screaming kids, everyone was rushed. All the staff knew me by then, by voice, by name, by daughters name. We were ushered in to see the dr between two others who had appointments, it was rushed, no examination, papers handed over. I had been hoping it was lactose, but it wasn’t, it was gluten and my whole world was spinning.

We walked out, papers in hand. Gluten cant be in to many things right..? My son was hungry, my baby girl was hungry, we were in a mall and the mall was spinning. I let out a small sob. My drained self couldn’t cope. That small sob was it. My husband rolled his eyes and told me not to cry again, our life was a mess.

I never cried about gluten again. I cried many times since obviously, but not about gluten in particular.

We went to mc Donald’s. Son had a burger, Aili had some fries. No gluten in fries right…? We went home. We went home and nothing was the same again…..

It was good different though, not bad different, because the vomiting….? It stopped that day. Our girls life was saved that day. It continued to be saved every day since.

I look back at that day now, and I feel sorry for the exhausted mum that I was, and I wish I could have given that mum a hug and told her it will all be ok, that its only hard at first, and that life will get better now. I wish I could hold that mum and tell her to cry it all out, get it over and done with – the crying. I wish I could go back and smile at that mum and encourage her, because back then, going gluten free seemed like such a huge huge task, keeping my baby girl safe seemed so impossible.

I was so tired from months of illness and hospital and clinic visits that any task – no matter how small- would have seemed impossible that day.

We did it, of course. I did back then what I still to this day do with all the new stuff. I learned everything I needed to learn, I got on with it, I looked forwards and upwards and onwards and I remained as positive as I possibly could, and I have, almost every day since. Even in my darkest deepest moments of despair, I am still a very glass half full kind of girl.

Gluten now, 5 years later seems like such a minor thing compared to all the things we are facing today. Sure, its hard still, but its second nature, I have done it for so long it no longer bothers me. 

If you are that mum that I was that day, today, tomorrow, yesterday… please know this. It gets easier. Really. It really really does.

Happy 5 years to us!

5-years

Dont forget to join me and my family on Facebook! 🙂

 

Not going to “normal school”

Im so tired of all the “knowitalls” and having to defend our daughter not going to school. Its like they think we are keeping her home willy nilly for FUN just because we feel like it.

“She wont thank you for it”, “She needs to be with her friends or she will be socially awkward”, “its not good for them to be home”. The worst ones are the swedes (no offence meant, remember, I am a Swede), because homeschooling is not legal in Sweden they all seem to think of it as something worse then witchcraft and I am obviously damaging my child by not letting her go to school. What the doctors say doesn’t matter. Clearly.

Strange how as an adult its ok to not work and to be long term ill or signed off as disabled, but a child must go to school or you are ruining them for life. I have two words for them all. FUCK OFF. You know nothing. You don’t know us, you don’t know the struggles we face or have faced, you don’t know that your child’s sniffle could mean a lengthy hospital stay for us. You don’t know the amount of thinking, anguish and tears that have gone in to this decision, a decision which was finally taken away from us when the doctors put their foot down and said NO MORE!

We, as a family are having to come to terms with our daughter, our child, possibly never being able to attend what you call “normal” schooling. Nothing you say is news to us. We have taken it all in to consideration. We know how damaging it may be, we know. We have also done our research and we also know that most homeschooled kids are well adjusted awesome human beings. A high school teacher friend of mine said she has never met a previously homeschooled kid who was socially awkward or not up to speed academically.

We are not hippies who don’t believe in education. We are not weirdos who think the system is faulty. We are not deeply religious people who pray all day (maybe we should – perhaps it would help!). We don’t feel the need to carry a sign signed by our doctors (our team of doctors I may add) saying “She is to ILL for school”. We don’t owe you or the world anything. The minute you say you homeschool every Tom, Dick and Harry (and their cousins uncles neighbour) has to have an opinion? I mean seriously? GO AWAY!

Our 6 year old is a well adjusted, friendly, polite, non awkward life and soul of any party. We do not need your advice. Thank you.

Phew. Needed that vent.

And I said the F word. Bite me.

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