Night time ramblings

Im sitting here, its late, and Im feeling happy and emotional at the same time.

Today was a really perfect day, I played frisbee with the kids in the garden, I did laundry while the kids played, we went to the pet shop for dog food, came back and took the dogs for a long walk. Celiac kid and big brother were running. It was nice. We came back, had dinner.

Normal day, nothing special right..? Only for me, the fact that we get to have these normal days is so very special. I think, for the first time in a very very long time I am more relaxed. I am trusting those lungs of hers to do ok, and I am breathing easier knowing that she is.

So my normal day… I am so grateful, so grateful for every single day like that we have.

There is a light , I can see the light, and maybe, just maybe, this crazy move we made will pay off, maybe we found our answer, please let it be so.

Its weird how the minute you decide to do something unconventional, like living apart from your husband, every Tom, Dick and Harry comes out of the woodwork and starts talking about how marriages will fail if you live apart, cheating spouses and failures, people who never once had an opinion about your marriage previously are all announcing pending doom. Whatever I say. Whatever. Really. None of them have a clue.

Living here, living apart is actually saving us, saving us all, because finally, we get to have these normal days. I get to play frisbee with my kids, and hang laundry and cook while they play and not worry that maybe now the wheezing has started and maybe now the cough will come and the issues that follow.

This is where we are not your average celiac family, because most do not have these issues that we have, if you are newly diagnosed I need you to know that if you read this, this is not the ‘norm’.

All we can hope now is that good gets better and better gets strong, and maybe celiac kiddo can outgrow some of these lung issues. Its really not fair that such a small little thing has to battle so many pneumonias. But if it happens, its ok, we live now, we take each day as it comes, try to stay relaxed, don’t make to many plans because cancelled plans are awful.

Today was a day that most people take for granted, and yet for us, it was one of the first completely normal awesome Sundays.

My son, my awesome trooper, my diamond, gave me a hug this afternoon and said ‘ thank you mummy for the bestest day’.

-Linda

Moving time! (again)

What a week!

Friday morning last week we were in Poznan, Friday evening we were in Wroclaw. By Sunday I had somehow magically managed to unpack everything! Then a frantic whizzing from place to place to sort out the school, kennels for dogs for our trip, food shopping, food shopping research (gluten free peeps know exactly what I mean!) etc etc.

We somehow managed to pick a great area for ourselves without ever having visited (thats how we roll, haha). Its great with tons of greenery, kids and barking dogs.

Im not sure what it is with barking dogs here…. if my dogs bark they get told off, but it seems here many people have dogs to deter from break-ins, and a quiet dog sleeping indoors obviously doesn’t deter much, so dogs are left stood in gardens barking. Drives me slightly bonkers, but it is what it is. At least I feel totally warranted to smile smugly at all these dog owners that MY dogs are so well trained and don’t bark.

We found a great little shop that sells organic produce and some freshly baked gluten free goods. I was to scared to get any of the baked stuff because even though the lady assured me it was baked in a gluten free kitchen you just never know. I need my hubby to go and ask her all the tough questions in Polish. But the produce! Gigantic organic apples that tasted like the apples from my childhood, I cant wait for summer when all the locally grown berries will come!

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The shop is called Awokado – delikatesy ekologiczne, they have a facebook page (opens in new window).

Slightly further up the same road there is yet another eko (organic) shop, a family farm and the produce is sold in someones garden! Eko eggs and veggies. Im in HEAVEN 😀

I have yet to find where the shops selling all the breads are hiding, so far its all schar. Im guessing I need to find another delikatessen. In Poznan we found most of the breads in normal supermarkets. Im sure I will find all what we need eventually.

Few more days now then its Dubai time! Cant wait. Also cant wait to come back and for kids to start their new international school where people speak only english. Happy happy happy! 😀

-Linda

 

Let the farm begin!

So much now to look forwards to. A new baby will be joining us in the end of April, he’s furry with 4 legs. I cant wait. Our dogs are not really ‘our dogs’, they are my dogs. This little guy will belong to the children as much as me, and I cant wait for us all to bond with him!

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He is a Havanese of course, its s small breed, non shedding, a breed that most people with pet allergies tolerate well. Celiac Kid wants a kitten, and big brother wants a budgie, and daddy said yes… (!!!!??!!). Lets see what happens with that. Big brother says ‘Let the farm begin’ and laughs. He must have heard one of us say it.

Before fur baby joins us there will be a trip to our beloved Dubai, and even before that another move!

On Friday we are off again, Im grateful that this time we are ‘only’ moving town, not country! Funnily enough Im not stressed in the slightest, just very very exited to go – get settled – make friends. And obviously, as with any new location… find all the best gluten free stores!

Wroclawians (can you say that?), if you have any good gluten free tips, please share with me!

So April will be busy to say the least, but good busy 🙂 Great busy!

-Linda

3 years since we were diagnosed…..

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I cant quiet believe its been three years…. I don’t remember the exact date, I remember the hospital stays, the dehydration, the coming home after, the vomiting, the diarrhoea, the wasting away, the screaming. I remember the heartache, I remember being absolutely numb. I remember not functioning for any other purpose then to hold my so obviously miserable daughter. I was at the end of my tether…. she was to young to tell me where she was. We were all suffering on a daily basis. Our life was awful. I remember the April school holiday, searching every shop in Dubai for gluten free foods, I remember learning to bake.

Its been 3 years since we got our lives back. Its been 3 years, since we were able to finally, on some level, relax.

Our life is talked about in terms of ‘before diagnosis’, and ‘after diagnosis’. Before diagnosis it was almost like we were somehow paralysed. There were days when I would walk with her for hours, and if I stopped, at any point, she would scream. So I would do circles in the mall, never stopping, just walking. I say WE were diagnosed, because Celiac disease affected all of us so very much, and still does. This is our life, as a family we are in this together, and we are a Celiac family.

Its been 3 years, since we got our lives back.

The road is still not always easy, but we do our best. Incidents of contamination are far and few between as we have all learned to avoid it best as we can. The battle now is with weak lungs and a crappy immune system that took a hard hit from a delayed diagnosis.

The battle now, is to help teach the world about Celiac disease.

Its been 3 years, and it feels like forever.

I cant remember us being a ‘normal family’ before diagnosis. Sure, we had our good days, and bad, but its only really since diagnosis that life has made sense. If someone is going to scream and cry fore a whole day, then its really better and easier for those around if they know why.

Its been 3 years, and we just keep smiling 🙂

-Linda