Pneumonia. Again. No, it wasn’t the last one that didn’t go away, its a NEW one. A FRIGGIN NEW ONE LESS THEN A MONTH AFTER THE LAST ONE!
I carry on, I do, I clean, cook, comfort, give meds, check oxygen levels and massage her back and cook some more and clean some more, and try not to worry and carry on…….
Horrible evenings with low oxygen levels, I pack bags and cry a little in my bedroom or the bathroom, the older kid cries and asks what will happen to HIM if celiac kid goes to hospital again and I carry on and comfort and cook and clean a little.
People tell me Im so brave and strong and all that other bullshit and I just want to scream because Im not strong at all, I didnt choose this, it chose us and I don’t have an option ‘a’ and ‘b’ where b is ‘lie on floor and do nothing’, so I carry on, that doesn’t make me strong, it makes me a mum. It makes me Celiac kids mum. And at times, I feel like this is it, this is our life, because it seems like we never get a break from it no matter what we do.
Im so tired, tired of doctors and tired of second opinions and people, PEOPLE! The ones who knows someone who knows someone who’s cousin had a kid like bla bla bla and have we tried bla bla bla….. I know these people are just trying to help but Im so freaking TIRED of all of it. Its not like we have sat on our bums and not done whatever we can to try to change this… we moved country for crying out loud!
I carry on, I try to live, I plan things and know they will probably be cancelled one way or another anyway, I clean , I cook, I carry on and in my head Im screaming at the top of my lungs because it is just so fucking UNFAIR all this shit, and how the hell can a 5 year old girl have had what, 9 ( or more ? ) pneumonias and I don’t know how many upper respiratory infections and bronchiolitis??? People DIE from pneumonias!! I am not strong, I break inside every time she is sick, how many times can you have pneumonia and actually be ok at the end of it? How many times can your oxygen levels drop THAT low with your heart having to beat extra hard and fast to make up for it and still be ok?
I am so tired. Not tired like I can sleep a bit and fix it, not even pregnant drewling on your chin kindof tired, but utterly exhausted, and if there was an option b to lie on the floor and just lie there forever and ever I would probably choose that……
But instead… I choose option a…. I carry on, I clean and cook, and cry a little in the bathroom.
Tomorrow allergist appointment and ‘normal’ dr. appointment, and off we go and carry on and bla bla bla….
Linda
GlutenFree & Me…. (and everything in between!) 
My heart aches for you- as a mom, grandmother and great grandmother, I have been in your shoes and felt that utterly exhausted, worn out stage. Someone once told me to find some old used dishes, take them outside while dad is inside with the kids, or go to a park, and start throwing those dishes against a wall or tree and scream your head off. Do you get any kind of help– relief, respite where you can just go off by yourself for an hour or two? My guess is you need some kind of a break- every day. One of my grandchildren was a 7 month baby with lung problems and asthma from birth on – even as an adult he struggles daily. I ran for every single emergency room visit to support his mom and still do. You are in a constant state of alert and that is not good for your health or well-being. Please take care of yourself too.
Thank you Sybil. I try. x